Maybe I’ll live past 50…

Hi, my name is Michelle (you may call me Chelle) and welcome to my page! I’ve always loved to write. Ever since I was a little girl. I even enjoy sitting down, grabbing pen/paper and writing down all of my thoughts. Reflecting my thoughts in a journal. It’s healing. It’s releasing. It’s a way to remember life. I also love to write letters. Growing up, I wrote letters to both of my grandmothers and my cousin. As a kid, it is so exciting to get something in the mail. For me, when I would write to them, address and place the stamp on the envelope, I was more anxious and happy for them to receive my letter! Writing has always brought me joy and comfort.

So, why am I doing this blog? What do I want to achieve? There are no achievements determined, only my deepest thanks to each of you for taking the time to read my ramblings and follow my adventures. I decided to blog to share my life experiences, the ups and downs and everything in between. I also want to share my journey since beginning the medication Trikafta. I have Cystic Fibrosis. I am 43 years old, and for the first time in my life, I am able to take a triple combination genetic modulator. It isn’t a cure. My lungs still are damaged after years of infections, coughing, mucus build-up. etc., with scarring and scar tissue. Trikafta will not reverse the damage. I am hoping for stability, maintaining and overall my quality of life improving. Maybe I will live past 50..? I’ve never felt this hopeful. Trikafta may be life changing for me. For all of us who can take it. I cannot wait for each of us living with CF to experience these new therapies and modulators. We all deserve it.

Thank you again for visiting my page. I hope wherever this finds you in life, you are happy, content and receiving the love you so deserve. All my love to you.

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