It has been a minute since I last blogged. Truth is, I’ve meant to. Truth also is, I’ve started three different ones yet cannot bring myself to finish them. Call it writers block or what you may, I just know I’ve struggled to set my words and feelings in stone for what is on myContinue reading “Weather the Storm with Joy”
Category Archives: Cystic Fibrosis
The Beauty of Silence
Who knew the impact this medication would have on me in not even 3 months? I remember the first dose, the purge of mucus from my lungs and sinuses the first 24 hours. My energy level feeling like I could climb a mountain effortlessly. The issues of wanting to eat everything I see in sight.Continue reading “The Beauty of Silence”
Reclaiming My Breaths
I used to be lost. Lost in the daily grappling fear of will my lungs stay strong for me today? Will I spend today coughing, struggling to live all the while inhaling this beautiful life? Will I wake up tomorrow choking on mucus? Will each step and breath when I run burn within my lungs?Continue reading “Reclaiming My Breaths”
An unexpected gift of life
It’s been 2 months since I first took my dose of the triple combination genetic modulator drug, Trikafta. Two months of life changing feelings to process, emotional breakdowns, breathing deeper, sensing more life in all I do with an indescribable gratitude and newfound hope of what is to possibly come. Two months of navigating theContinue reading “An unexpected gift of life”
The wonder of it all…
As I sit here and reflect on how this past month on Trikafta has been for me, the most gorgeous, breath-taking snowflakes are falling steadily in their own peaceful rhythm. A soft snowfall. Serenity. All things are made new. It sparks a deep perspective within my soul. In all we are given..the joys, sorrow, struggles,Continue reading “The wonder of it all…”
Life to my days
It’s time. I’ve stretched. I’ve rolled out every inch of my being on the foam roller. I’ve hydrated. I’ve eaten. I’ve got anything else I need ready. Here begins one of the best parts of my day. Time to lace up the two most beautiful running shoes before me that help carry my entire body.Continue reading “Life to my days”
“Don’t stop anything”
This past Wednesday I had CF clinic. It was my first appointment since starting Trikafta. I don’t know if this is the beginning of repeated check-ups like this one. If so, I may just be a sobbing-able-to-breathe-deeper-laughing-longer-without-coughing-no-longer-wheezy-singing mess for the rest of my life. All went..incredibly well. Typing now, I forever struggle to express theContinue reading ““Don’t stop anything””
Breathing At A New Pace 