Life – Breathing At A New Pace

Weather the Storm with Joy

It has been a minute since I last blogged. Truth is, I’ve meant to. Truth also is, I’ve started three different ones yet cannot bring myself to finish them. Call it writers block or what you may, I just know I’ve struggled to set my words and feelings in stone for what is on myContinue reading “Weather the Storm with Joy”

An unexpected gift of life

It’s been 2 months since I first took my dose of the triple combination genetic modulator drug, Trikafta. Two months of life changing feelings to process, emotional breakdowns, breathing deeper, sensing more life in all I do with an indescribable gratitude and newfound hope of what is to possibly come. Two months of navigating theContinue reading “An unexpected gift of life”

The wonder of it all…

As I sit here and reflect on how this past month on Trikafta has been for me, the most gorgeous, breath-taking snowflakes are falling steadily in their own peaceful rhythm. A soft snowfall. Serenity. All things are made new. It sparks a deep perspective within my soul. In all we are given..the joys, sorrow, struggles,Continue reading “The wonder of it all…”

Life to my days

It’s time. I’ve stretched. I’ve rolled out every inch of my being on the foam roller. I’ve hydrated. I’ve eaten. I’ve got anything else I need ready. Here begins one of the best parts of my day. Time to lace up the two most beautiful running shoes before me that help carry my entire body.Continue reading “Life to my days”

“Don’t stop anything”

This past Wednesday I had CF clinic. It was my first appointment since starting Trikafta. I don’t know if this is the beginning of repeated check-ups like this one. If so, I may just be a sobbing-able-to-breathe-deeper-laughing-longer-without-coughing-no-longer-wheezy-singing mess for the rest of my life. All went..incredibly well. Typing now, I forever struggle to express theContinue reading ““Don’t stop anything””

Humbled Breaths

For breath is life, so if you breathe well you will live long on earth ~ Sanskrit Proverb Tomorrow is Thanksgiving. A day we typically reflect on all we are grateful for. I give thanks every day for every breath, each step and for every moment, big or small, I am given. Right now though,Continue reading “Humbled Breaths”