It has been a minute since I last blogged. Truth is, I’ve meant to. Truth also is, I’ve started three different ones yet cannot bring myself to finish them. Call it writers block or what you may, I just know I’ve struggled to set my words and feelings in stone for what is on myContinue reading “Weather the Storm with Joy”
Category Archives: Trikafta
The Beauty of Silence
Who knew the impact this medication would have on me in not even 3 months? I remember the first dose, the purge of mucus from my lungs and sinuses the first 24 hours. My energy level feeling like I could climb a mountain effortlessly. The issues of wanting to eat everything I see in sight.Continue reading “The Beauty of Silence”
Reclaiming My Breaths
I used to be lost. Lost in the daily grappling fear of will my lungs stay strong for me today? Will I spend today coughing, struggling to live all the while inhaling this beautiful life? Will I wake up tomorrow choking on mucus? Will each step and breath when I run burn within my lungs?Continue reading “Reclaiming My Breaths”
An unexpected gift of life
It’s been 2 months since I first took my dose of the triple combination genetic modulator drug, Trikafta. Two months of life changing feelings to process, emotional breakdowns, breathing deeper, sensing more life in all I do with an indescribable gratitude and newfound hope of what is to possibly come. Two months of navigating theContinue reading “An unexpected gift of life”
The wonder of it all…
As I sit here and reflect on how this past month on Trikafta has been for me, the most gorgeous, breath-taking snowflakes are falling steadily in their own peaceful rhythm. A soft snowfall. Serenity. All things are made new. It sparks a deep perspective within my soul. In all we are given..the joys, sorrow, struggles,Continue reading “The wonder of it all…”
Breathing At A New Pace 